BUSINESS BEFORE THE BOARD A. Presentation by Youth & Family Services and Social Services on Rare Diseases. First Selectman Pace invited Public Works Director Larry Bonin to address the board. Mr. Bonin reported that his band “Late for Dinner” had performed at a fundraiser
for a resident’s daughter. The two year old suffers from CDKL5, which while it doesn’t have a formal name is considered a rare disease. Larry asked Youth and Family Director Heather McNeil to speak. Heather stated that 1 in 10 suffer from a rare disease. She asked Sue Consoli to address those assembled. Sue stated that she suffers from a rare disease-celiac disease. Larry then asked Mark Leopoldino, the father of Avery Rose, the two year old girl recently diagnosed with the rare disease CDKL5, also spoke in support of community efforts to raise awareness and research dollars. Larry told the Selectmen that he has set a date for a fund raiser at the Katharine Hepburn Cultural Arts Center which will include his band along with several others. A resident Eileen Radziunas related her battle with a rare disease; she was examined by over 100 physicians before getting a diagnosis. B. Discuss and act on Proclamation on Rare Diseases. First Selectman Pace asked Selectman Manning to read the
Proclamation. MANNING/PEACE Motion to approve and sign the Proclamation declaring the last day of the month of every February will be observed annually as Rare Disease Day in Old Saybrook, Connecticut. MOTION CARRIED UNANIMOUSLY C. Budget Workshop with WPCA and other departments as needed. First Selectman Pace invited Gracia Lewis, WPCA Financial Manager to review their budget. Gracia stated the budget is different this year with the passage of the Waste Water Management District. The operating budget is lower than the current WPCA budget. There is a construction budget that is funded from grants and loans from the Clean Water Fund. The homeowners also contribute towards the cost. D. Discuss and act on Town Budget as recommended by the Board of Selectmen to the Board of Finance. The Board of Selectmen reviewed each department’s budget. They made no further changes. PACE/PEACE Motion to approve the 2011 – 2012 budget as substantially presented and to forward to the Board of Finance. MOTION CARRIED UNANIMOUSLY |
